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SCDAA Miami-Dade County Chapter, Inc. was established to encourage and support education, testing and genetic counselling in the hemoglobinopathies (sickle cell disease and related conditions); to encourage and support research in sickle cell diseases and related disorders; to encourage and support effective and sensitive medical treatment for persons with sickle cell diseases; to solicit and secure funds for the support of programs that provide these services….
Sickle cell anemia (sickle cell disease) is a disorder of the blood caused by an inherited abnormal hemoglobin (the oxygen-carrying protein within the red blood cells). The abnormal hemoglobin causes distorted (sickled) red blood cells. The sickled red blood cells are fragile and prone to rupture. When the number of red blood cells decreases from rupture (hemolysis), anemia is the result.
This condition is referred to as sickle cell anemia. The irregular sickled cells can also block blood vessels causing tissue and organ damage and pain.
Sickle cell anemia is one of the most common inherited blood anemias. The disease primarily affects Africans and African Americans. It is estimated that in the United States, some 90,000 to 100,000 Americans are afflicted with sickle cell anemia. Overall, current estimates are that one in 500 U.S. African American births is affected with sickle cell anemia.
The sickle cell program at the University of Miami attempts to provide a multifaceted social services program to help patients feel confident about themselves and their future, to help family members lessen the impact of this chronic disease, and to resolve any problems that may prevent patients from taking advantage of treatment opportunities. These services are all supported by your generous donations and our annual fundraiser events.
The primary source of our fund are from donations and fundraising events.